I finally got down to 5mgs a few months ago, but then I started getting new pains and problems, which I didn’t actually think were related to PMR. After a few weeks of suffering I decided to take 6mg. Within 24 hours all those problems disappeared overnight, so I continued on 6mgs. I had 4 really good weeks, but those problems are all returning again. The new pains affected both arms … sharp pains radiating from underarm into mid chest (right side) and left shoulder and hand aching worse than I have ever experienced before. I haven’t experienced those pains before. All my other problems were consistent with the beginning of PMR problems. This week I am overheating all the time, perspiring madly, but I feel cold and clammy to touch, says husband. Pains are just starting in head again , behind ears. Is this withdrawal symptoms or flare ?
The return of sweats has always been a sure sign of a flare for me, as is wrist pain at the base of my thumbs. I’d be inclined to say a flare - as it ramps up it may make the dose you need increase further too.
Have you spoken to your doctor?
I am in the midst of changing Doctors as mine had a ‘hissy fit’ as I had gone up 1 mg. She was most unprofessional and actually scarey. I have been away in the city for a few weeks babysitting my Granddogs and went to my previous Doctor of 20 years (I had to change due to shifting), and she was so practical, so confident that I know my own body better than any Doctor. Mentally she was a breath of fresh air, and a relief. I was left insecure about my own decision after previous docs outburst, so I needed to check with people on here. I saw your answer on another post about withdrawal symptoms, so I needed to check. We are in the midst of a cold blustery winter here and my overheating is really out of control and out of character. I did suffer it in the early stages of PMR and a few other bouts when I decrease, but this is over the top.
Thank you thank you thank you sooooo much Eileen
How silly to object to going up 1mg (I’m assuming that isn’t a typo!!) . You need what you need - not what a doctor thinks you need! Couldn’t you go back and live with the granddogs???
I sweat profusely all the time. I think it’s caused by the prednisone . just sitting all of a sudden sweat is coming out of my head & dripping down my face. any suggestions to prevent the sweats?
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i would say it is a flare up!
i managed to get down to 3mg but then had a flare up. Had to go back to 10mg but slowly Ive reduced to 5mg.
I have stayed at 5mg for several months having my blood checked monthly.
Im hoping to reduce to 4mg next month but am in no hurry!
No, not a typo… I am enjoying a lazy life with the grandogs but I love my country lifestyle too. It was a wake up call, as I had been putting off making a change of Doctor. Onwards and upwards I hope, and downwards with the pred eventually.
Thanks Anne. I suspect it is a flare, but reality is, I just don’t want to believe it either (like the doc).