This might be TMI, and I’m sorry for posting so much lately, but I’m really having a rough time. I have had really bad side pains and went into an urgent care today. They took a urine test and it wasn’t immediately positive but said there were white blood cells in my urine. Until the culture comes back, they’ve put me on antibiotics - did anyone else experience this with mono?
My health anxiety is through the roof and the 48 hours for the culture sounds like torture. My bp was also very low and they dismissed it as being dehydrated but I’m drinking so much water!
Hi BJams,
My daughter went through this twice, but it eventually improved with the antibiotics, good to drink alot of water,
I recently did a urine test and they found white blood cells in it too.
Hi bjams,
yes!! This was the main reason why I went to see my doctor in the first instance. I had cloudy urine and thought I had a uti but I didn't have any uti symptoms!? Just elevated white cells in my urine, I am not sure whether it's gone to be honest,...I do try to drink plenty of water.
caroline.
Hey Bjams,
Just wanted you to know I'm thinking about you, what a terrible time you've been having and just hoping everything settles down at least to a manageable level soon. Take heart in that you've done the right thing by going to get yourself checked out, I'm not sure how it works with mono in relation to urine tests, but it would make sense to me that if your body is fighting the infection then the white blood cells would show up in the urine, it sounds like it would make sense but I'm not medically minded and hoping that the antibioitics help if it's maybe been another wee infection you've picked up on top of mono.
It's really understandable to feel so anxious, just want to let you know that I'm still believing in your recovery and that God will bring healing - this is just a bad time and it will pass over, just really hoping that it passes over very soon. Drinking water sounds like a good plan for sure, just be kind to yourself and give your body rest and relaxation, although I get it that it's so hard to do that and give your mind a break too when going through this.
Just take one day at a time, don't look too far ahead and remember that you WILL get through this - I fully and completely believe 100% for you - even if it takes a bit of time yet don't panic because you are going to get better.
Craig
I’m so glad the antibiotics helped her! I know UTI’s can cause this but so can kidney malfunctions so it’s really a scary experience!
Did you get an explanation why?
HI Bjams,
It is usually inflammation caused by bacteria or virus and inflammation tends to go along with mono, Epstein Barr. My daughter was light headed on and off throughout this virus.
how absolutely strange. Were you prescribed antibiotics?
No I wasn't. As it wasn't a uti.
i ended up having a scan on my bladder and kidneys, all fine, a ct scan, fine. A tb urine test, clear and std tests, all clear!!!!
but I'm sure it's still cloudy now!!! I have no abdominal pain or anything so I assume it will clear one day? When I'm truely on top form, but I am going to mention this to my gp next time.
Thank you, Craig. I very much appreciate your continued positivity and reassurance. I am drinking tons of fluids and hearing similar stories on this forum does help to ease my mind. Hope you are well!
Hmm... I did have an abdominal CT scan in December before these symptoms or the mono diagnosis, but maybe if the urine culture comes back ok, I should push for a TB and std test. I hope I’m not taking antibiotics for nothing!
It was for gonorrhoea .
every test I've had has been clear. Which is obviously good. And I am so much better than I was. I still have warm legs at night. These last two weeks have been really good for me, even did a two mile walk today!!😱 I am assuming it's the virus and it will just go in time
x
Hey Caroline,
Good to hear you've had a settled couple of weeks, that's brilliant you managed a longer walk yesterday - really well done! Hoping that things can continue to go in a positive direction, for sure you most definitely deserve that having been through such a wringer with this!
Probably not relevant but just a quick point on urine, if anyone's taking B vitamins then it will make your urine go a bright yellow colour - that's very normal and nothing to worry about, just your body getting rid of the excess B vitamins it doesn't need to use.
Thinking of you all and hoping for a good day today for everyone.
Craig
I just have to post an update because I am extremely frustrated.
Tonight, I had severe lower back pain and stomach cramping, and suddenly became very dizzy and hot. I went to the ER and without them running any tests except a urine test, was basically told that I don’t have a UTI and it was the medicine affecting my stomach. I was then asked if I was taking the anxiety medicine prescribed in my chart (I haven’t since I found out about the mono), and was told my heart rate was really high because of anxiety. I was sent home with discharge papers that say I can “probably” stop the antibiotics and I should follow up with a psychiatrist about stress.
I’m so frustrated. I’m convinced that I’m going to die because they’ve written me off to anxiety. How could they possibly know my stomach isn’t bleeding or my spleen hasn’t burst - just from looking at me and a urine test?
So frustrated and awake now hoping I’m okay.
Thank you Craig,
and I've got up and done the school run! This is the beginning of week three for me feeling great....it would be lovely for this stretch to carry on, fingers crossed I can beat my last 3 week stretch which was back in November!
And these last two weeks have been full on too!! School runs, shopping and cleaning.... Eeekkkkk!!!!!!
x
Reading what you’ve been through makes me so angry. Doctors need to wake up and actually start doing their job instead of attributing everything to depression and anxiety. I’ve seen so many doctors and almost every appointment started with “so, have you been going through anything stressful in your life, or feeling depressed?” NOOOO! Now the first thing I say is doctor, I am NOT anxious or depressed. I am worried about my health, but I think it’s natural considering I’m 25 and suddenly feel like a 99 year old on her deathbed. :@ GRRRR I AM SO ANGRY FOR YOU.
Bjams, next time please be a pain in the butt and demand blood tests, demand to know what the doctor thinks is causing your sudden stomach pain. You really need to advocate for yourself and push back when you aren’t getting the care you deserve and need.
On a side note I had terrible back pain to the point it made me nauseous (thought I had Addison’s disease lol). I also went to the ER and the doctor felt my back and said seems fine. Wha?! I feel for you.
Hi Bjams,
Sorry to hear you've having this terrible trouble at the moment. I totally sympathise with your frustration also, a total nightmare. If there's any doctor or medical professional you trust, be it a GP or whatever, please do go to see them. It's so hard to find a good doctor, and it may well be part of the virus but then they need to follow up and examine you properly - I've had so many of the same kind of situations myself visiting ER it's terrible these days.
Thinking of you man and hang in there.
Craig
Thanks for validating my pain! It it such a terrible feeling to be dismissed.
The horrible part is that I sort of dug my own grave - I did fall for the anxiety trap before I was diagnosed because I did experience a significant trauma about two years ago, and so I have that in my medical chart that I was briefly (while seeking medical care for the mono symptoms) prescribed anti anxiety medication. Now I have just been put in that box.
I did go in and see a new primary care doctor, and after doing a thorough exam, she said basically said, yep it is mono, I can feel your lymph nodes so just rest and drink fluids, stop taking the vitamins because it might be upsetting my stomach.... and that me stressing about it so much wasn’t helping. She then launched into a speech about stress on the immune system. I didn’t push for any tests, but probably should have. I’m just so lost about what I’d even push for.
Hey bjams,
What kind of testing do you feel would make you feel more at ease? Do you want to 100% confirm mono? If that’s so, you can ask for monospot test, EBV profile, or CMV profile. EBV and CMV are the two main viruses that cause mononucleosis symptoms, though I’ve read that other viruses also cause mono symptoms but those are the main ones to ask for. Not sure if doc will agree apparently these tests are “expensive” (I’m in Canada doctor agreed after I asked for it, had to be requested by me though).
I hope this helps. Is your lower back feeling better? I’ve found that these symptoms will last for a week and then go away and then a new symptom will start and then that will go away... I too had terrible lower back pain but it went away after about 2 weeks. I know it feels frightening, especially if you were a previously healthy person. Hang in there. You have lots of people here to cheer you on the road to recovery!