I was diagnosed with sjogrens 2 years ago. My pain is on my neck and tingling on my head. With dry mouth and eyes. Taking plaquenil, restasis for my eyes.
Does anything help with the pain in the head and neck?
Painkillers which I don't like taking. But I was wondering if it is cranial neuropathy as I was reading a book on sjogrens they explain the tingling could be the nerve on my brain. Don't know . When I visit my doctor and explain the symptoms he says it's not related to sjogrens . I would like to see a doctor that specializes in sjogrens. Can some one help me give me an address of a doctor in a London so I can consult. Thank you in advance.
I am very curious to hear any information that you find out. I have sjogrens myself and frequently deal with headache and neck pain. I am not currently taking any treatment for it, but I have found that rests and massage helps with the pain. I was researching the issue, and found that neck and headaches are common in people with lupus. Now I know sjogrens is not lupus, but I also know that the two are very related. What I found is that the headaches are caused by excessive muscle tension in the neck, and they recommended anti-inflammatory pain killers. I am still wondering if this also happens to people with sjogrens..
I hope you find a good doctor for treatment soon. I have been told that rhematologists are generally the best options for treatment.
I was tested for lupus which is negative . I was on methotrexate , steroids, now I am on plaquenil. Once I stop taking meds the pain on my neck gets worst like I need a brace. I hope to find relieve soon.