I replied to a post that was 3 years old. I have an appointment with a gynecologist, next week. Been celibate for almost 4 years and have been dealing with uncontrolled high blood pressure, congestive heart failure and severe sleep apnea. I have worked so heart to get these conditions at a manageable level and now this!! I'm afraid to go to the doctor and even more afraid not too. Anybody, out there. Please help.
Don't know whether I'm understanding correctly: You know already that you have LS, or you are going to see your gyno to see if you have indeed LS?
There is lots of good info on this site - check for instance the discussion on Borax.
Many of us are following a certain diet - for instance, sugar is a trigger for many. I myself am careful to not consume any added sugar, no gluten, no alcohol, no caffeine and limited dairy. It makes the load lighter.
Hope this gets you on your way.
Angela please don’t loose heart 🙏🏻❤️
LS IS manageable 🤗
have you seen a doctor who suspects LS and has referred you to a gynaecologist?
If so she/he may do a little biopsy to confirm whether it is LS Once you have that diagnosis you will be able with their advice to start the treatment which is best for you.
I totally agree with Hanny who I think we are following a pretty similar diet. (Except I drink a 🍷or two of wine at weekends 🙊 )
Angela you will be fine once you know what you dealing with X
Sorry to hear all your health problems. I think it is important to keep in mind that you CAN get help with LS and your doctor can do this. There a treatments that will help you such as creams to really help with the soreness and pain. Hope your appointment goes well.
Thank you for the reply. I really appreciate the kind words. I'm glad I came across the forum.
Hello, I have a upcoming appointment on Nov 1, 2017. I suspect that I have it, because I have thhe exact same symptoms as another young lady on this site. I can't believe that my genital area went through this kind of transformation and I didn't even know it!! Had I been sexually active, maybe I would have discovered a lot sooner.
Hi, going on Nov 1, 2017. Thanks for sharing what I should expect. I will share this. I think that I had mentioned that I was celibate for quite some time. After seeing what my genital look like, I feel as if I will be for the rest of my life. I guess there are worse thing in life than no sex. Prior to this, I had started to want to date and possibly work towards a relationship, but not anymore.😔But first things, first. I need to know exactly what I am dealing with.
Angela
You no worry about no dating or no sex
Realistically when you meet someone you get to know each other Take a little time
You are a strong woman Angela Already overcoming difficult conditions and managing them✅
Please don’t negate your plans for sharing and building towards your future.
It is good you seeing gynaecologist soon then you know exactly what initial treatment can be prescribed for you
LS does not always prevent sex. with the right lubricants and moisturiser It depends on how it presents its ugly 👹 self
You will feel a lot more in control after your appointment 🙏🏻
Love X
Angela,
sorry to hear about your medical problems. Yes, LS can be scary but with the right doc and his/her help you can start on the right treatment. Once you do that and you see and feel the difference that soreness and pain is subsiding you will see that there is life with LS. As far as future realationships you should not give up hope. I think this site is wonderful. It helps to see that you are not alone with this disease. There is a lot of information on this site and it has been very helpful to me. You seem like a strong person with all the medical issu es you are dealing with. Have the biopsy and once you know for sure you will be able to start treatment. I agree with Sedg, once you know for sure what you are dealing with you will be fine.
Don't blame self in any way Angela. It is just that LS is so little known among people. Society teaches to have regular breast examination, but never talks about regular examining of your vulva area.
Thank you. You all have made me feel a little less stressed. Again, I am so glad I found this forum. Your replies give me hope.
I don't know if I should tell you that I have had LS for 30 years!!! But I am telling you because for 30 years I haven't spoken about it to anyone else but my husband and all my gynie prescribed was a steroid cream which I have used continually for 30 years.............. I don't know how many times a week! I can't begin to tell you how thin my skin is and how much I have been suffering. BUT here is the good news!! Since finding this forum about 6 weeks ago my life is all the better for it. I am now using a mixture of 4 tablespoons of Organic Castor Oil, 2 DROPS Lavender Essence oil and 1 DROP of Lemon Grass oil and the itching has completely GONE... gone, gone. It is like a miracle. I have also bought some Borax which I have started to put in my bath water but I am going to buy a spray bottle and mix 1/8 tsp of Borax into 1 litre of warm water and use that instead as it is much cheaper. A LOT of ladies have been assisted by using Borax. I am now using the steroid cream once a week as I I have found over the past 6 weeks, for the first time, that I am now "fusing". This hasn't happened to me before and I think it is because I stopped the steroid cream completely about a year ago. I used Desitin baby cream instead which was OK but not as effective as the steroid cream. If you try the Organic Castor oil mixture it is VITALLY important that you don't exceed the DROPS and use a small dropper. Some ladies have complained that it burns and I think that can only be from exceeding the drops and perhaps using a bigger dropper than I have used. I use a dropper from a nasal decongestant bottle.
Good luck and please try different remedies on this forum to find something that will suit you......... I am sure you will find something. I have tried various "diets" over the years (tried the no sugar for 2 years), cutting things out, and nothing has made any difference to me. Maybe spices, wine and tomatoes........... the jury is still out on these
ingredients! 
Jan
Jan, Thank you so much sharing your story and providing an alternative to dealing with the itching. Since everyone had been so kind, I will post the results of my doctor's appointment.
Angela good luck with your appointment tomorrow 😘
I hope your consultant is nice and able to put your mind at rest regarding future and set you on a good treatment path.
This Army of LS Women are waiting to hear outcome so you have us for support and you will be in good hands 👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️👯♂️
We all with you Angela
Love n Peace 💖X
Hello everyone. I went to see my new gyno on 11/01/17. I was super nervous about our discussion, but she tried to put me at ease. After my exam, she said it could be one of two things; Vitiligo or LS. She said my genital area looked normal despite the fact of change in color. She did perform a biopsy because she said that would enable her to give a more accurate diagnosis. I'm still recovering from that cut. Also tested to see if the itching may be a result of a yeast infection. I won't know the results of the biopsy for 1-2 weeks. I am trying to focus on other things while I wait, though the itching is a bit of a reminder. After reading your stories, I realize that whatever happens, I should be thankful that whatever I have, is happening at 57 (almost 58), instead of many years ago. Some of you have been dealing with this for a long time and for that I am truly sorry, but also grateful that you shared your stories and offered me comfort, after my first post. God Bless.
Please let us know how things go for you. I am interested to hear if yeast is affecting you.
Jan
Hi Jan,
I just recently posted this in response to another ladies injury. I don't have a yeast infection. I wish it was that easy. I have L.S.. I am so grateful that the biopsy was negative for cancer, but I spent most of the afternoon, crying because I felt like I was "losing" something with having the L.S. I was prescribed the Clobetasol, once at night for 4 weeks, twice a week for 4 weeks, then twice a week thereafter. My pharmacist had never heard of Lichen sclerosis. Told Toni, that right now, I am so upset. I cried most of the afternoon. I know that there are worse things in life, but I need a moment to grieve, for what I believe is the loss of my genitalia. I'm still glad I found this forum. I just need a moment to get used to whatever my new "normal" will be.
Hi Angela, Please don't give up hope. I have had LS for 30 years and never thought to look for a solution on the internet until a couple of months ago. Through lots of advice on this forum I feel as if my life is starting over at 67 years of age!! There is so much that you can try to make yourself better ..... yes you can get better. One lady posted that she used Borax for 18 months and finally her "parts" unfused!!! It might take some time but if you are diligent with trying everything you will win the race. I saw my gynie this morning and I was told to cancel the op I had scheduled for next week to have a lesion cut out! Three weeks ago my gynie told me to use an estrogen cream every night and that is what has healed the lesion!! I should have done this a long time ago to strengthen my thin skin (thin from using a steroid cream every day for nearly 30 years mind you!!) I am now spraying Borax a few times a day, using a mixture of Organic Castor Oil and Essence Oils (have given you the recipe), using the estrogen cream now 3 times a week and I am going to use a steroid cream once or twice a week to prevent the fusing happening. I actually stopped the steroid cream a year ago and that is why I now have some fusing. Other remedies that seem to have helped the ladies greatly are coconut oil, emu oil and Australian Dream Cream. Just try to find something that can work for you. The Borax spray is (people seem to have different ideas on quantities) 1/8 tsp to one glass of warm water or 1/8 tsp to a litre of warm water. Someone said a "pinch" of Borax to half a glass of warm water. Also read that you can put a tablespoon of Borax in a shallow bath and soak for 20 minutes. This cannot be done too often as it can have a drying effect. If you are not using an estrogen cream then perhaps you should be, speak to your gynie. I have had a hysterectomy so there is no threat of breast cancer for me by using this. I am also on HRT 3 times a week and my gynie said it would help my bones and it is good for preventing colon cancer!!! Can you believe that!!
Long story, you must be exhausted reading all this but I just don't want you to cry and give up hope. Also try giving up sugar and wheat............. seen this quite a few times on this forum.
Take care
Jan
Hi Jan, Thank you for your response. I have calmed down some. I also decided to make use of a benefit, that my job has and will begin seeing a counselor who specializes in patients dealing with chronic illnesses. Not sure if she know about L.S., but I'm struggling and while I am blessed to have a good support system (my siblings, a couple of close friends and now this forum) but I need more. I woke up last night with itching in the area, where I had my biopsy and the realization of this disease has resurfaced. I put some coconut oil, on the area and that made it feel much better and I was able to go back to sleep. There is SO MUCH information, in this forum and that, in itself, can be overwhelming. Right now, I'm going to stick with my ivory soap, use the clob as directed, and use the coconut oil. You have a wonderful spirit and your words of encouragement did help. I just need to process this info and try and figure out what my new normal is.
Hi Angela
glad to hear you are feeling better and that the coconut oil seems to be working for you. Good news indeed.
Take care
Jan