hi everyone. going on 14 months with this virus. any one experience blurry vision? sometimes its SO blurry!! and other times its fine. (i wear contacts and update the script often). also white tongue? no matter how much i scrub or brush it always comes back. anyone have this as well? thanks
also does having chronic ebv mean your immune system is suppressed?
hi nicole, yes my vision is very blurry and i have eye floaters
Hi Nicole,
I've personally not had white tongue but i've read on here that a lot of people have suffered from it, so it's nothing to be worried about. Yeah at times my vision is honestly dreadful, it seems to come and go. I was so worried about it that at one point I ended up going the opticians and having an eye test! But my eyes were fine and was told I won't need glasses until i'm at least 50, so I'd guess the blurry vision is just part of this horrible virus unfortunately.
Not so much white tongue but holy cow insane dry mouth. I've been sick almost 7 weeks. Much better but just annoying lingering virus symptoms...horrible insomnia, nightmares and night sweats or if I dont sweat I just wake up super hot (but not having fever anymore) I only has fever very early on in the start of the illness. When I wake up (like 5 times every night) my mouth is so dry it's like theres cotton in it, I've never had anything like that. I am also having terrible anxiety from this virus I cant eeven believe a virus can cause these feelings.
i understand completely! its hard to even believe that this is all the virus. my health anxiety spiraled and i was convinced this was something more serious. i experience the weirdest symptoms at the most random times. super distressing. hope you feel beter
its such an annoying symptom! hope you feel better.
Hello Nicole,
I'm so sorry to hear that you're having the issues with blurry vision, I really hope and pray this is just a temporary thing and settles down soon. Perhaps it may be worth trying glasses for a period rather than contact lenses, as it might give your eyes a bit more of a rest as I know I used to have some bother when wearing contact lenses in the past and could only wear them for short periods really.
Like George, I've read a lot of people on the site talk about the white tongue, it seems like this can be a symptom of mono. It's always worth checking in with the doctor / dentist regarding this and hoping they can offer some good advice / reassurance.
Nicole I really want to reassure that at 14 months in, despite this being a horrible time and going on for so long, it doesn't mean to say that the EBV is chronic or anything like that. Remember it can take people an extended period to full recovery from these things, for some people it is maybe about a year for some people it's a bit longer, but it doesn't mean to say you won't fully recovery and get back to full health again. I'm not an expert at all in this but I think when they talk about chronic EBV it's generally people who have lots of health issues / other complications which makes it difficult for them to get over mono, but remember that you are young and will get through this and that the vast majority of people, even after going through mono for over a year, do get fully over it and back to full health again.
I'm just hoping and praying for a turning point very soon for you Nicole, I know you must be so weary and fed up, and just hoping that the doctors and family / friends around you are being helpful and supportive - just continue to take things a day at a time and take care of yourself, rest when you need to, and still believing that God is going to heal you and get you well again. Thinking about you still.
Craig
what kind of vision problem did you have? how long it last,was it all the time?
hi,can you help me...how was your vision with mononucleosis? i have big problem with blurry vision and light sensativity
Hi Mia,
So sorry to hear that you've been having this issue with blurry vision and light sensitivity during mono, I can only imagine how awful that must be to deal with. It was a long time ago that I had mono and hard for me to remember exactly, but thankfully this wasn't one of the troublesome symptoms for me - however I have read that this can be a symptom for some people with mono.
My experience was that although it was awful and took a while to fully recover, all the symptoms did get better Mia, so there definitely is hope and definitely is recovery from this horrible virus. I know it's so hard to see that when going through the frightening and debilitating symptoms and when it seems to go on and on at times, but I want to reassure you that things will get better and with a bit of time the vast vast majority of people with this make a full recovery! And that's coming from someone who really struggled for an extended period with it! I know it was only down to God that I was able to recovery and I believe that He will help you recover too Mia, hang in there.
Message anytime privately if you want to chat, I've not been on the forum as much as I used to be and sometimes I don't get notifications on the forum unless it's directly responding to a message that I posted. Hang in there, you will get 100% better I truly believe that Mia given my own experience and everything I've learned about this horrible virus over time.
Craig
hi Crieg...i am sooo bad...so you know someome who had this kind of syphtoms? doctor here dont know anything about that,thay say it is not mono...so i am positive for mono but my regular blood test is good
hello,how is your vision know? i have terrible problems with that all the time
Hi Mia,
I don't know anyone with mono really other than the folk I've chatted to on the forums here so I'm not an expert or anything, but I was on the forum quite a lot for a couple of years and I remember a few folk talking about blurry vision and the virus affecting their eyes, and I have read too online that it can be a symptom for some people although not necessarily one of the most prominent ones.
I do empathise Mia as I know many doctors don't seem to appreciate how debilitating and horrible this virus can make you feel, but truly it does get better I want to reassure you. It's definitely worth getting checked out with a doctor or maybe even optician if your eyes are bothering you and hoping they can put your mind at rest a bit. The virus can really mess your system up for a little while and affect so many things so hopefully everything will settle after some time, but absolutely get checked out if it's affecting your vision.
Hang in there Mia, there definitely is recovery and good health and life after mono! Please message any time if you want to chat about it and let me know how you are doing. Thinking about you.
Craig
i checked vision at 5 opricians and they say is great,that is problem,also neurologist said the same...so i am confused,also i have coxacie but also didnt see anyone with this problem..i am so confused...my brain is fine,my eyes are fine but my vision is not :// dont know what to do
Hey Mia,
You definitely did the right thing getting checked out by those opticians and the neurologist too, although it's frustrating that it's not helped you get to the bottom of it take it as reassuring that they don't think there is anything major to worry about for sure. I can only imagine how frustrating and frightening it must be to have issues with vision, hoping and praying it will just be a temporary thing due to the virus and that things will settle. I remember having a lot of phases when different parts of my body bothered me during mono and then settled down, so maybe you're body is just reacting and hopefully things will settle. Of course definitely go back though to the doctor or specialist if still having issues and things don't settle.
So sorry to hear you have also been dealing with cocksackie too, what an awful time you've had by the sounds of it. I will keep you in my prayers Mia I believe God is the great healer and I know it was only down to Him that I was able to get fully well again after mono, and I believe that you will too!
Just wondering if maybe taking some vitamins or supplements that help with the eyes and vision might be good for you. I'm in the UK, there is a supplement called Visionace made by Vitabiotics which contains vitamins and herbs good for the eyes, I know they say Vitamin A especially is good for eye issues so maybe worth having a look into that. I'm sure there are lots of vision-supporting supplements out there though and not just the Visionace one I mentioned.
Message any time and keep in touch!
Craig
@craig07920 the King has returned!
Not in any way king like Nick but I appreciate your kind sentiments! I hope you are doing well there!
Hey Craig, I attempted to message you privately, but to no avail. My name is Katie and I just wanted to say thank you. I became extraordinarily ill with EBV seven months ago. I thought I was losing my mind- some days I still do:) I have other autoimmune conditions and it's been a challenging road to say the least. In the worst of it, I looked to the forum for positive stories, insights, and helpful hints to gain some momentum and help my body recover. Your unwavering positivity has truly been a gift to so many of us. I am not sure what the future hold for me or my health, but I am determined to do all I can to turn the odds in my favor. Anyway, my point is to say - THANK YOU- and ask "How are you?" If you are able to message me privately, you are more than welcome. I simply couldn't find an option to do so. Katie
Ebv makes your eyelids swell sonthis could be part of it. I also have blurry vision at times....especially after reading or work on the computer. It just takes time. All will heal soon think positive and rest when you can