I was just wonerding if others noticed a limited amount of energy availabe after resting, instead of calling it tired, I am calling it lack of energy.
Many may not understand this small difference, but I was wondering if anyone does.
.... or fatigue, I don't like that either as it seems to be a description of continous effect.
Yes I see a difference. I suffer from both but sometimes I don't feel as tired but I still have the lack of energy.
To be honest, one of the things I miss from having ME/CFS is being tired... When I was in the army there was a genuinely pleasant feeling in having exercised to a high degree and then being able to relax afterwards feeling tired.
Nowadays I never feel tired, I often feel totally exhausted, sick, ill, debilitated, drained, weak, infirm, faint, pained and generally very unpleasant, but never tired.
Like LaszloLH, I also dislike the term fatigue, it sounds so effete and certainly doesn't reflect how I feel at any time, hence why I hate the term CFS. Again, in the army I knew what fatigue was and it's absolutely nothing like I feel now.....
I agree with you Mike. I remember going on a CND march; some of us went the wrong way and got lost, walking for hours, and I still remember that pleasant feeling of tiredness.
But what I miss the most is the fresh early morning outdoor feel and smell, like dewdrops in the brain. It was exhiarating and I'd love to have it back, even once!
l think their is a tiredness where sleep is needed, and cant be resisted, but other times a body being tired to extent of feeling ill, but sleep not needed, even at night when its more natural and needed. l can barely recall the times of being tired naturally, laying down and drifting into a pleasant sleep that refreshes and energises. Sleep now a strange time, whether night time or daytime naps that suddenly overcome. still wake up feeling groggy sometimes chilled, sometimes clammy, not good. . l,d also love to run through a meadow in sunshine, wade in the river, ramble in woodlands scrambling over rocks and gates. Work hard till 2-3am then fall asleep wake up a few hours later ready to continue with hard work.
For all the feelings Mike states, which we all feel, it is a basic lack of energy to the extreme, maybe a thousand or ten thousand times less than experienced in years prior. Energy and exhilleration were taken as normal, now a magical hope. Who knows, maybe some day in future.
I remember that morning feeling too Georgia, As a keen fisherman, early mornings on a riverbank were one of the most joyous times of my life...
Houseman's poem always seems very apt.....
Into my heart an air that kills
From yon far country blows:
What are those blue remembered hills,
What spires, what farms are those?
That is the land of lost content,
I see it shining plain,
The happy highways where I went
And cannot come again.
Very true, lovely and relavent. l guess many wont relate to this, but l think you will, the unique smell of the riverbank, also the smell of early morning grass cutting, hope you feel that again Georgia, some perfume, love it,, spent most of my childhood growing up leisure times along the banks of the river Aire, nearby, watching rainbow trout, through clear water, catching minnows, avoiding bloodsuckers, seeing swans herons mallard, harrier once, water hen newts and spawn, riding horses bareback, getting thrown off, chased by bullocks,dens and brambles. great adventures and learning, not many kids cant roam free like that now. Nostalgia, but live in hope.
I call it extreme exhuastion like nothing I've ever felt. Calling it tired or even fatigue makes it sound so trivial. That's why they've been working for years to change the name. I can't tell you how many people have told me " I get tired too". It infuriates me! CFS doesn't sound sick and alot of people just roll their eyes at. I like that it's changing to ME.
Bonnie
l think if you said extreme exhaustion or whatever some would mock and say` lve also ..........., ` nature of some people who dont experience it themselves, and can only relate to what they feel and think, small minded syndrome theyve got. But agree that ME sounds a more serious and real condition. l have intersticial cystitus, origonally called hunners ulcer after scientist hunner who discovered ulcers on the bladder wall of patients, then it renamed intersticial cystitus, describing instericial intersticiam-cracks in bladder, now its renamed painful bladder syndrome, again the syndrome tag seems to downgrade, leaves it open for others to say lve a painful bladder. Wonder if its the word syndrome that makes it sound more trivial or pretentious, `oh lve a syndrome`, as if not a real disease. ibs same, syndromes dont seem to be taken as seriously. Maybe there are serious sounding syndromes l dont know of. But yes it warrants ME
How poignant and apt, reading it was like being stabbed in the heart when I reached the last lines!
I've said this before quite a lot but we have to grieve just as though someone we love has died don't we. We grieve for the lost us.
Ah yes Lynne, fresh cut grass, what a lovely smell. It seems to clear the mind. I use essential oils and Scottish Pine's smells so fresh, but it doesn't bring back the fresh morning scent where you feel so alive when your brain's full of cotton wool. 
I wish I appreciated it more when I had it; like many things.
The only time I use CFS is when I want to be sure that I'm being understood and I put ME/CFS. I never use it on its own. You're right Boni it trivialises something that's extreme and terrible!
Agree, heinsight is wonderful, if we had it, nothing taken for granted.
It occurred to me that with ic. cfs, ibs, dont know about other syndromes, but they describe a feeling rather than a disease, leaves it open for anyone to say `l feel that as well`. Cant say that with ME
That's something this illness has taught me, to appreciate everything, even the little things. When I occassionally go out I'm like a little kid appreciating it! 
Ditto, recall on one occassion when ill and housebound a week or more, then on a lovely warm summer evening feeling well enough and my son giving me a ride up to local coop half a mile away, windows open summer evening air, sat parked up with door open, really a big deal,
Also taught me to never dismiss others illness symptoms whether physical or mental, having had mine dismissed mocked even by gps, l,d now always accept people,s problems at face value unless obviously not right. We learn, often the hard way. What a way to learn. Hope we can all get some pleasure out of the fine weather, def like spring today, uk.
Thank you, I just wanted to put this out there and pleasantly was surprised by the response. On the name change. I think it is happening as that is how I ended up being CFS. Once I diagnosed myself and took it to a doctor who agreed with me, my life changed since I was able to get on disability. Only took me 10 years! My accident was on Apr 10 2006 and 3 month later I lost half my energy. I just didn't know how to call it then, but to get back to the name, I read in the news about this. Search for "change the name of cfs disease" on google for articles. After reading that, I was going like "...this is what I've been saying for years! something is wrong with me, stop trying to fix my mind.." While calling it a disease is nice, I don't think there will be a fix until find the cause.
I found this http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_DiagnosticAlgorithm and went Yes, Yes, Yes, Yes, and took it to the doctor who agreed.
I don't call myself ME, because I have no pain. Not anything related to the lack of energy. I have other pains and my body is wasting as the result of it, but I think that is different.
So over the years I ended up calling it lack of energy because I noticed that depending how I manage it, makes a difference. So that means a finite amount that only long and complete rest can fill up again. And when I run out, like someone said, complete exhaustion, feeling sick etc. I am trying to avoid that. In fact often I am not doing what I want, doing what I think will use up the least amount of energy so I can be up, so I don't have to go to bed. I am just resting in bed, but not actually being able to sleep and that's boring. Like someone was talking about sleep and awake being very similar. Very true for me. The way I think of it is on a scale of 10, a normal person would be asleep at 0 and awake at 10. So 5 is the middle. I am 4 when sleeping and 6 when up. Awful state. About 12-14 hrs of rest, 10-12 up. Seem to be the best I can do. Done it different way over the years.
I think I wrote enough 
I think I agree. Feeling tired seems like describing a feeling. Oh, it's in it, literally We used to rest it out, but now, a lot of rest (complete rest) give only so much of energy. Need to be very frugal about it.
I wrote something about the name change in the other post and trying not to get to complete exhaustion. I've been working on that for years....