I have an inside feeling that i am moving but this only happens when i am not doing anything. Its kind of like like i am on a train moving or an airplane. I am not falling over or losing balance. I cant even watch t.v and just relax. It feels much better when i am moving. It actually feels better when i am driving and doing exercises. This is really annoying and dont know wat to do. I still have a very big appetite but i cant really enjoy the food because of this. I Think the problem is either the neck or the ears. I got blood tested and urine tested( came back normal) and didnt need to do further tests because keeping me in bed. My doctor gave me paxil but i kinda dont want to use it yet because of the side effects. I am so mad because how can you get dizzy when your not doing anything, doesnt make any sense. I just need some advice and if some one could explain what is happening to me.
also i have no pain any where, no headaches, nothing but this one symptom. This developed after getting the cold.
Hi Rich,
I've had a similar off balance sensation for about a year now. I've been told by 2 ENT's that they aren't convinced it's to do with my ears and are positive this isn't a neurological dosorder either.
My main symptoms are a general imbalance, usually better when in a moving vehicle. It appears to come on during meals and lingers. It's particularly noticeable when I'm standing still, like standing in a queue, or within a crowd.
Fortunately, I don't suffer with any nausea or committing but I do panic badly.
At times, my ears (and my head generally) feel stuffy, very slightly achy and my vision is distorted, a little blurred around the edges - like I can't focus properly. My eyes have been checked and my sight is almost perfect. Go figure!
Like you, I've managed to keep my appetite but my anxiety (through all of this) has other ideas!
I don't know how I manage to wake up every day feeling like this but I know I can't go on for much longer. The fatigue is enough to make me give up - I don't believe I've ever been so tired than I have these past 12 months!
Nobody seems to have any idea what this could be so if you have any ideas, I'd be grateful to know. Personally, muscle or joint problems just doesn't fit!
I know right, nobody knows an answer to this stupid thing. I would suggest going to your dentist because that can also cause this feeling. It so stupid that your teeth can also cause this, which makes no sense at all and just makes me mad. For me its not really vertigo its an inside feeling of movement. I dont see spinning, i dont even get nauses. Its so weird.
Hi Rich
It sounds as if you could have inner ear problems. Have you had a cold or ear infection recently. This can affect the ear resulting in vertigo. Vertigo has different levels of sensation. I suffer from vertigo, tinnitus and migraine and have the sensations you describe. When my vertigo was at its worst the room was spinning and I would fall but now it has settled down with medication my symptoms are milder, although it can get bad at times.
Vertigo can be worse when you lie down or relax the head but it does take time to recover or improve. My symptoms were so bad I had to retire early from work but after five years I am now able to have a good quality of life, although I am still on medication.
Hope you feel well soon.
I have same problem had vertigo coming up a year ago, I am fine upright but laid in bed I can go dizzy without moving????
I did have a cold before this happened. But with me i dont see the room spinning i just feel as if i am tilting/moving to one side. But this only happens when i am not doing anything like sitting. I feel it the most when i am sitting. It has been about 3 weeks and its still there not as intense but its still there.
Hi Rich, have you got better from this? I've had similar problems for a few months now. I keep feeling unbalanced especially when i sit down or when my head is down. Thanks
It could be neck related. I've been having the same symptoms. I'm 25-30 yo, Male; 150 pounds; excercise regularly and eat very healthy. I have an office job and spend 80% of my active day in front of computer and cell phone. I have a very bad posture.
Dizziness started 3 months ago, sometimes with pain in eye. Sometimes the dizzyness turns into a bad vertigo and because of these episodes I went to the ER on 3 ocassions thinking the worst. I've been to the gp, infectologist, ent, cardio, hematologist, neurologist and did all the tests: everything came out optimal. However the neurologist did some check-up and when he touched a specific neck/head muscle I felt an excruciating pain. It results that I had damaged a nerve and had neck and head muscle spasms, which can cause dizzyness, headaches, pulsating temples, and other neurological symptoms.
Google: occipital neuralgia
I am in pretty much the same situation. Dizzy when i lay down, get up and sometimes when I'm walking. I been to the dentist and had my wisdoms pulled. I been treated for an ear infection and i am still dizzy. Doctors don't know what it is. It's horrible.
This started for me 2 months ago. I was under alot of stress on maternity leave. Was sittin downstairs one morning at 6am giving my baby a bottle while watching tv. Somethn clicked in my left side of brain and everything moved to the left and me with it. Shouted for my partner to come grab the baby. I calmed down and my eyes came round after a few minutes. Tried walking upstairs but was sliding to the left against the wall like i was drunk. Since that i have head pressure, odd headaches, vision problems and disorientation every day. Along with this i have had about 5 random extreme dizzy attacks like the first one since. Doc is sending me to ent after having a few checks neurological wise for stroke etc. He says i dont have any symptoms of tumours etc. Its rujning my life and has cauaed me to have bad bad anxiety and extreme panic attacks. One happened today in the hairdressers. Ive been given prochlorazine beta blockers and betahistrine but they make me worse along with my fear of taking tablets. My dizziness is somehow associated with my eyes. If im sitting still reading watching tv or anything my eyes go funny and boom dizzy galore. Eye test was fine. Bloods fine. Waiting for ent. Due back to work in an office to sit at a computer for 8 hours while on the phone in 3 weeks and my stomach feels sick thinking about it. Its ruining my life day to day and im always waiting for the next attack. I may get a few hours break here and there but its physically and emotionally drainjng my body. Please help anyone. Im so convinced that 1 of these attacks will eventually kill me.
Hi, Lisa
I've just found this forum thread a.d read your post, whilst I don't have all your symptoms and experiences I do have a lot of them.
Would love to find out more from you as I've not found many people with our type of symptoms.
Have you found anything that helps it?
I noticed the dizziness most when I sitting down say to eat or work at the PC or when I'm standing still, feels like my body is gently swaying.
It's definitely effecting my life, doctor has been good and done the usual bloods, referral to ENT and Neurologist, got various scans booked and I'm just in limbo waiting...
Hi Guys,
I have these same symptoms - I work in an Office setting and spend my day sitting in front of the computer. I find this is the worst!! I can be home and be somewhat fine throughout the day - it's sitting that causes it to get gradually worst throughout the day. I've gotten to the point where sometimes I will almost pass out - but I get up and move and I am fine. When this happens my heart beats rapidly and I begin to shake and then it passes!
This has been happening to me for about 5-6 months. I've had a CT - at my request and my doctor recommended a 24 hour holter monitor - I am still waiting on results from that. She also gave me some medication for calcifications - in the event that I had an inner ear infection.
Would love to hear how you guys are working around this or if you/your doctor comes up with some answers! And I will do the same.
Hi Danielle
I can relate to it being worse when I'm sat in front of PC at work but not when I'm out and about on the move.
I'm current awaiting dates to undergo mri scans on my head and like you had to do a 24hr heart monitor test which has picked up that I've got arythmia....I've got various appointments with specialists scheduled but I'm at a bit miffed what is.
But will update when I have some news
Hello to Everybody, I found this discussion after searching on the internet and can lend my experiences (although unfortunately not a cure).
I have been suffering exactly the same issues, which started in 2012. This first manifested itself as severe headaches (one specialist suggested I was having cluster headaches). Gradually over several months these diminished but I have been left with the same sitting imbalance/dizziness occurences as descibed by fellow contributors. I have been scanned so many times they could probably build a replica. I have had balance tests, x-rays, neurological referrals, eye tests, vascular tests, mri scans, ENT, diagnosed with Labrinthitis, spinal disorder, this that and the other. Injections in base of spine (actually my a**) with steroid based injection.
ALL scans, tests came back with no issues, in fact the senior neurologist said he would 'die for a spine like mine' after reveiwing the latest neck/head mri scan.
In short - nothing works.
I have been off work for 2 prolonged periods when the imbalance wouldn't calm down, but returned with reduced hours leading back to full time.
Echoing another contribution, I enjoy walking driving - any motion is good and relaxing. Sitting in front of a monitor (I have 2 in front of me) is the worst, watching TV not as bad.
Having more or less given up on finding the medical cause (let alone a solution) but I have found some things which help ME which I will share - but please don't take this a a recommendation - these are things which help ME, and could well have the opposite effect on someone else.
Seating position - believe it or not slouched backwards (like a couch potato) works best for me - I tend to avoid sitting upright - my theory is that there is a compression somewhere which I am avoiding in this 'casual' position.
Stretch the whole body - stand upright and try to make self taller and hold for while (had a read about the Alexander technique on self help).
Minimise rotation movement when seated - for some reason this twisting of the spine/neck is not good for me whien sitting down.
Avoid rapid side to side eye movement - rotate chair (without twisting body) if I want to look to the sides.
I get up and walk around every hour (recommended by health sites), and use a foot rest.
My totally unproven theory is that there is an nerve compression somewhere, could be local to the head or even at base of spine (remember the giddy in head feeling if contacted at base of spine), but in association with this the optic nerve is somehow involved as well; whether this is a direct link, or something 'in the neurological loop' is a just a guess.
Anyway hope this experience is of use, or at least lets you know that you are not alone.
Ive had this for 10 years!! I can tell you ive had every test...mri...ctscan and all negative!! Its your inner ear. 3 weeks of sudafed PE and Gufassin syrup will fix it!
I wish sudafed and gussafasin would clear it up. Is be thrilled.
Hi Guys, I appreciate you've put all the matter yo here. Was going throuh various post for about some time now & found this approriate to my condition.
I'm male, 27 from India & diagnosis in India is a big time challenge. Happy to see rich started a discussion about exactly what I feel. Some of the symptoms as mention below presists from about 25 days now.
1st episode looks like,
Started with sudden head spinning on one fine day I was working on computer
Dizziness
Uneasyness
Sudden blurred vission
Confusion
Had immidieatly gone to GP & was diagnosed with low BP which was actally not the case hence was given ORG powder to maintain BP.
2nd episode immidiately after 2 days
All similar symptops appeared again
Additionally headache that too so severe
Had gone to GP again was given vertin mg & stemetill md assuming I was suffering from a vertigo
Medication lasted fot about 10 days, from 7 the day I was feeling fine and stop taking medication from 10th day on wards assuming it was all fine
2 days later, it appeared again & this time I've decided to go to ENT who followed same medication of vertigo bit this time I did not take it, not sure if ENT has really done inner ear diagnosis but I think that needs to be done looking at th posts from you all.
ENT did not convince me & hence I've gone to neuro for further check ups & was again prescribed with vertigo drugs along with that I was asked to get CT scan done. I was not really convince to take medication as it was the 3rd time I got it prescrisbed from neuro following general GP & ENT but yes, I've got my CT scan done which came back normal.
Since couple of days, strange feeling of wave like situation happening to my brain and feels like gentle waves are passing through my brain which is wavign my entire body as well. I work for almot 9 hours facing computer with regular gaps in between to maintain the momnentum.
Lying back on the office chair, I've also observed wave like feeling was connecting to my heartbeat which was felt on the back of neck & feeling like hearbeat & waves are adjoining.
Just wondering what could this be in case anyonce can help
I suffered from similar symptoms and a coworker told me that she had too. She said that she had "rocks" in her ears. If its the "rocks" causing your symptoms, they are actually little salt crystals moving in your inner ear. Apparently positioning your head a specific way will cause the rocks to shift. To diagnose a provider will tilt your head into various positions and look for eye movements called nystagmus, this also determines where the crystals are located in the ear. If nystagmus present your condition is called benign paroxysmal positional vertigo abbreviated BPPV. There are simple head maneuvers to reposition the crystals depending on where they are located in the ear. If you have any cervical neck issues you're either not supposed to perform some of the manuevers or are supposed to stop if you have additional symptoms that occur during treatment. Thankfully for me, I got tremendous relief with performing the Epley head manuever at home. Hope this is helpful, vertigo is terrible!!!
I have the same problems, get ready because I know what it is.
A) Trigeminal neuralgia, triggered by allergies or nerve damage from dental work, chewing, even if you have glasses on your face,
B) major - digestion - reflux from a hernia can cause acids to rise up from your belly and trigger the neuralgia which can cause the dizziness
see a neurologist and gastroenterologist.
Try watching acidic foods, alcohol, caffeine, nicotine, prop head of bed up 6 inches, I take Clonazapam and it helps. For me, I have so many problems and I know the end is near but if I can help someone else get better than I will be happy.