Hiya Friends,
Just wanted to share my day with you ( what I can actually remember of it that is) My wonderful daughter in law was let down by her child minder today and asked if I could possibly sit my grandchildren for a couple of hours They are aged 6 and 9 so not really babies needing a lot of care so I said yes Bored within an hour with TV we decided to take the short walk opposite to the local park Armed with bread for ducks and nuts for squirrels we set off I admit I frelt a little light headed before leaving home but oh my! I honestly felt like I was a ghost walking through the park...... like i was there in body but not really there in mind. I wandered around following the children then sat on a bench as they played nearby. Couldnt wait to get home again Really feel sad that I couldnt even enjoy a nice hour in the park with my grandchildren Just wasnt really there if that makes sense?? Now at least I know that if i get that light headed feeling again, not to roam too far from home Actually a little frightened now thinking back on it.......... Fibro fog I am told ?
With think maybe( for me) this is the worst symptom. I can cope with pain and discomfort but when it affects my head ( as it frequently does) I don't feel I'm actually here. It's a horrible feeling and when it goes on and on you almost feel like your on the outside if life somehow( if this makes sense?) I have whole holidays I struggle to remember. It is sad isn't it? X
Thats exactly the way I felt Lynda - On the outside of everything I was always so organised and planned, organising the rest of the family too Now I can barely organise a meal - forgot to cook any veg tonight so had potatoes fish and nowt Lol May help daughter to understand I am not doing this on purpose and she does have the ability to cook her own tea!!
Im new to all this but I also feel like this and it's so scary .I didn't understand what this was as went to the doctor a few weeks ago saying I felt as though I was floating on air while trying to walk and I honestly was ready to fall over . Sometimes when people are talking to me I switch off and just stare at them..i know I'm doing it but can't do anything about it..Driving like this is awful!!! 
so this is fibro fog?
Yes the dreaded fibro fog does indeed make you feel quite unreal. I have terrible trouble with concentration and memory. I have to write everything down. And if anybody tries to explain anything technical to me there's no hope at all! I can only speak for my own experience with the 'fog' making you feel outside yourself; I've kind of got used to it. You will undoubtedly have to make lifestyle changes and it sounds to me like you may find a course of CBT helpful in dealing with that. Good luck. X
Thats what my Gp called it Emma I have stopped driving recently I just know that I dont have the concentration levels anymore I am new to this illness too and really dont understand this part of it I can understnd the pain and discomfort but dont understand where this fog comes from Just know that it scares and frustrates me and often makes me look like I am losing it! ( IF I ever had it! )
My GP has suggested CBT but I am unsure of what it is I have had a really traumatic past 2 years and it really is something I dont want to revisit or talk about I cant even follow pretty short conversations lately let alone my husband trying to explain Greeks Euro mess as he often attempts to do!!! Can you please let me know what CBT is? As I said I dont want to be trawling over the past Thanks
Bless ya yeah like you I'm just about getting my head around the pain but the foggy feeling is awful it is sooo scary I am waiting for the day that I fall over. I'm sure people think I'm losing it when they are trying to talk to me and I just can't answer them or if I do it doesn't make sense im so sorry you are experiencing this.. but thank you for posting as it's helped me understand xxx
Hi Wendy, CBT is a type of therapy (not counselling, so you won't be asked about your past) but it teaches you coping mechanisms to help you sort of change you way you think, which helps you to deal with things, be it pain, depression, grief, lifestyle changes or anything else you are struggling with. It has very good success rates.
That doesnbt sound so bad Am back at GP next week so may ask him to arrange that for me Thanks for that
Its a great forum Everyone has been really friendly so if I can do anything to help anyone else then I am happy to
Good luck Emma
Good idea. I don't know what services are like where you live, but when my GP referred me to the pain clinic at local hospital, where I was diagnosed, I was told that they run 'fibromyalgia courses' there. I was assessed by a psychologist a couple of weeks later, for the course, but at the time I had not long started taking Pregabalin, and it made me quite euphoric at the beginning so I was assessed as not needing the course at that time. She said if I changed my mind later I could be re-referred, and now, a year or so later, I am thinking that I will ask my GP for that. You may have something similar where you live. Good luck x
Hi Emma, I must go to bed soon, keep thinking of things I want to say to people! I've found when driving that I'm ok if I'm going somewhere familiar, but even in my own town, I can know where I am, and where I need to get to, but can't think how to get there. I went to my daughters (about 5 mins drive away) but went by a very circuitous route because I couldn't think of the best way to get there. I wouldn't contemplate driving anywhere I wasn't familiar with, especially alone. Yes the fog isn't nice. But don't despair. x
That sounds great I will ask my GP about a pain clinic and if there are any Fibromyalgia courses I would like my family to know more about my illness too so maybe there is something they could attend with me I am only currently taking 25mg Amitripylene and paracetomol which does nothing Thanks Jeanne and the best of luck to you too x
Hiya Jeanne, what does CBT stand for? I've never heard of it that before.or..maybe it called something else in Australia...,thanks :-) xx
Its Cognitive Behavioural Therapy
It's just awful, I used to forget what I was talking about, mid conversation all the time...felt such a clux, when I had to keep saying to people.." sorry, what was I saying" grrrr but playing a lot of brain games has really helped me. I hardly get it now...playing something as simple as ..solitaire is great..:-) xxx
That was a quick answer.,thanks...perhaps it's why my consultant told me to play brain games...it really has helped me ...:-) xxx
hahaha I have been doing that Borrowed my grand daughters player and her brain game program It seems to help me a little too but still cannot sit through a half hour tv program
Your on the same med as me, I've been on it for 16 years now-never ever had it increased either .also I take Ot
TC Osteo Pabadol-paracetamol-slow release ...works wonders fir me...it's funny isn't it? That some meds work better for some people, and they just don't help others..I take my amatriptilyne befire bed and OP 2-3x a day... Pain clinic is excellent..I wish we had a Fibromyalgia course over here..sounds great,,:-) xxx