Don’t you hate it when the able-bodied try to encourage you with cliches that no longer apply to chronic pain patients?
The one that irritates me most is, “If you can dream it, you can do it!”. or, "the power of positive thinking" ... Here's one of my favorites
just keep moving and be "Mindful" of your tolerances.
It makes me want to reply, “Really? I’m dreaming that you would feel my pain”.
What at are some of the irritating response you receive from those who do not suffer from chronic pain? And what do you tell them?
I would rather rant about the lack of "van with wheelchair ramp" accessible parking spaces...today I backed into a hospital parking space so that I could drop my ramp.. some parking attendant came running over crying "you can't back in" I pointed out the lack of signage and rolled away at top speed.
Pain, chronic pain, severe chronic pain I have had for 54 long years. I agree, a great coping skill is to find something else to focus on...like taking Ziggy for a walk. Or soaking in a hot bubble bath to loosen muscles and relax me. Or using my tens on modulate while cleaning out CharlieGirl's cage. Or driving to the grocery.
Mind over matter can lessen a bad situation. Try a dark room with a pleasing scent and soothing music.
And just start thanking our good Lord for his many, many blessings. .
I hope your pain lessens
kind regards
judith
The most unbelievable things happen. Now that was worth a good rant.
I park in handicapped with permit. The looks I get because I look ok, don't walk with a cane or look "handicapped" , the looks I get from others coming and going is priceless. I have often thought of taking pics of these screwed up faced looking at me, I can't even repeat some of the comments.
Some day I may post a blurry version and caption .
" You look ok to me. I want your parking space."
Oh, believe me I'd give it up I'm a nano second to have my health back.
I say be kind to others you don't know what they are going thru!
Hoping you feel better too!
well, now we both feel better😜
Thanks for this opportunity..lets have some fun ( lol)..." I'm gonna get you into the swimming pool"..."don't look so depressed there are others who are worse off"..." I have had worse pain and got over it " I remember when I had my last baby etc." "you are not allowed a Gin and Tonic "...." when are you going to get up and make dinner "..." maybe the doctor made a mistake"...." try walking a little every day and you will eventually be able to get back to work "....I could think of lots more comments that make me wild...but I am sure others would like to get into this....great post "hope 4cure" you are a wizz.....thanks to this forum for us...we can speak to each other without fear of B.ll sh..it ..replies...Love it.
You go, gal!
Wanted to be a civilian handicap parking enforcement officer.. but the official vehicle is not power wheelchair accessible !!!!!!!!!!
Ha..ha..I bought a motorised wheelchair...but crashed it into the wall....and now it's gathering dust in my office...back to the ordinary one..but my hands don't work so I can't "power" myself around...have to wait for a "pusher"....!!!
Hey!
I have 1274 miles on my Quantum. ..do not quit...turn the power level down . take it slow...a parking lot is awsome placw to get adjusted...between my Quantum and modified van I roll and roll and roll...that what the wheels are for!!!
Gosh I wish I had a parking lot to practise in but I live in a remote jungle type mountainous region in north Bali...!!!
As for turning the power down..tried that but it's about as slow as a jet fighter now.. Before it was a tad over supersonic. Maybe roller blades and two walking sticks..eh...!!! But will try it again when I get a crash helmet....
Bali!!!!!!!
I am in Colorado Springs, Colorado USA at 6,300 feet above sea level. My condo is backed to a mountain ridge.
I want ro trade chairs...supersonic is what I dream of...5 miles per hour is barely moving.
When you use the joy stick, use light pressure.. you are not driving a big rig!!! How about a road? or a roof top. or an empty field.
Don't give up...and put flowers on the helmet...a purple, yellow, and orange helmet.....
Hi Gloria, I went to the grocery store today. A all day exhausting experience who would have thought.
T remember shopping for my mom all the time now I get why.
Today most of the peeps at the store were very helpful. Especially when they see me rolling down the isle in my cart. I love those things. Just think the baskets are too low.
I can't reach something someone helps me all the time. Even load my groceries in the car.
My hands are frozen from RA so my fingers don't work to well. The cashier ripped the coins out of my hand to get the change needed and I yelled ouch and everyone looked at her and she apologized. Sometimes it's just a matter of lack of education or ignorance inpatients when others are impatient. She gave me some mm's for Halloween ! Yummmm
There are also a lot of very kind and helpful gentle peeps that never question just want to help.
Hope xxxx
colorado is beautiful. Lived there raise my kids before it got so crowded.
the snow driving drove me nuts. Something I never got used to driving in.
now that winter is coming look into a snow plow for your chair.hehe.
I need to find a ice proof shoe with grippers.
i remember a few years ago when I was in so much pain my dr said, "read the book I'm ok your ok". However a fear years later I had gallstones causing the pain . So it wasn't in my head.
Today this wonky site won't let me post to individuals so hope this works.
I went to the grocery store today. A all day exhausting experience who would have thought.
T remember shopping for my mom all the time now I get why.
Today most of the peeps at the store were very helpful. Especially when they see me rolling down the isle in my cart. I love those things. Just think the baskets are too low.
I can't reach something someone helps me all the time. Even load my groceries in the car.
My hands are frozen so my fingers don't work to well. The cashier ripped the coins out of my hand to get the change needed and I yelled ouch and everyone looked at her and she apologized. Sometime it's just a matter of lack of education or ignorance when others are impatient.
There are also a lot of very kind and helpful gentle peeps that never question just want to help.
Hope xxxx
PS Now the posts show up..
So my bad back hips knees have had it for today! Just grateful for all you that make me laugh! Needed that!
Thanks
Hope xxxx
Snow plow??? Nope, I want skis!!!
After growing up in Chicago, Colorado snow is a piece of cake...been here twenty years...love it.
My ortho doc is head doc for Olympic Team USA, Pan American games...
Has tons of signed jerseys on wall. Thank youse from everybody but Michael Jordan. When my surgeries are complete I think I will sign and frame an xray of my shoulder to my hand with the 8 artificial joints showing up all shiny!
So, what should I write on it?
Oh yeah we all skied that was a big deal then before snowboards. All the kids went to all the ski resorts. My favorite is Steamboat. Vale is lovely too, loved to ski the black diamond at Vale they were the best groomed.
Loveland had too much ice. I nearly killed myself once hitting ice once.
So your heading to the slops soon getting skiis and boots. I'll bring my ski boots with me for my THR they are really used as a guide on the surgery table to keep legs in line see you tube. I knew I should keep them.
Not me on the slopes any more, but I take my grand kids. They snowboard.
I'm getting out the chains. Hope you shoulder recovery goes well. You have FS ? Sounds like you have a good doc.
Hope xxx
Me put on ski boots and skis...on my feet???.....I want them fitted on my power wheel chair!
To graduate high school, I had to complete four years of gym class...I did by playing pinocle!
After both arms and hands tunedup, I want to do something big, really big to celebrate..
So the new discussion is... if were able to celebrate really big...what would you do?
I really like that idea for a new discussion. Go for it.
i know after my first new hip I was really happy to celebrate at Disney World.