hi every one I've been very weepy lately and had another restless night could the pred be causing this ??
Pred can cause low mood and depression.If it continues I would mention it to your GP.
PMR is so devastating to a fit and active person that feeling miserable is inevitable. Coupled with the fact that very few recognise, sympathise or have even heard of it doubles the feelings of rejection and unfairness. You are not alone.... I can now recognise people with PMR just by the way they are walking down the street. In the supermarket I met a lady who was obviously suffering... I just said PMR and she hugged me ! We are having lunch next shopping day.
PMR needs recognition.
i am coming up to two years after diagnosis and my doc told me it would probably go into remission after that..... No sign of any such thing unfortunately... But I still believe that one day I will wake up without it.
Forgot to add PMR can itself cause low mood..Do not know how to tell the difference;maybe Eileen or Ptolomey may know
I know it certainly has affected my mood and emotions Molly. I hardly recognise myself sometimes. And as for restfull sleep! Ha!
I hope it passes for you soon. If at very least you can find the cause, you can understand why it's happening. I'm tending to find if I embrace what pred is doing to me, it's helping me cope and fight. And of course being surrounded by others who understand helps zillions too.
Your so right Karen I don't know what I would do without this forum , the information I got from rheumatologist made me believe I start taking pred and that's it everything is fine , he told me I might experience a flare up but didn't go to much into that ,it was just you take pred for about 18 months and that's it . He sent me a booklet by arthritis uk but that just glosses over everything no mention of low moods or lack of sleep etc
Same here from my gp. He hasn't referred me to a rheumy. Says there's no point as my bloods show nothing. Once the first dose of 40 mg kicked in, he told me to resume normal activities and start to reduce. Since then all he seems to want is lower another 5mg lower another 5mg and dismisses side effects, but I can tell it's because he doesn't kow not because he doesn't care. By default I have found another gp at the same surgery who is totally clued up on PMR so I shall be seeing her this morning. If it hadn't been for this forum I would have fallen into a very deep pit as I felt there had been a wrong diagnosis made. Why was I still feeling pain when I reduced? Why did I have horrific palpatations, why couldn't I sleep etc. Did you manage to get hold of the booklet "Living with PMR&GCA"
No having problems downloading form for the booklet will try again . I hope you have much better luck with this new GP I've managed to get an appointment for later today to discuss my feelings thanks for chatting
Good luck with the doc. Keep us posted. x
Low mood, weepy and restless nights.......same here!
Hi Christina Fay,
How nice you have found a new "friend"!! You will both feel better having someone that understands this invisible disorder. You can bolster each up and have "bitch" sessions to when you need them (and we do sometimes don't we😉).
Hope you wake up soon and it is gone!
hugs,
Diana🌸
hi Moly,
i guess you you have already learned that your symptoms go with the territory. I do find when I get to a dose of pred that my body likes they get much better. When I decrease it takes a few days to adjust again.
Have you tried changing the time of day you take your pred? Some find even splitting the dose helps with the difficulty sleeping and other symptoms.
Good luck with the doctor and don't get discouraged if she doesn't get it. There are others out there that will and you always have the experts on this forum to give you guidance. I could never have made it without them and my doctors are pretty good.
Hugs, Diana🌸
Thanks everybody Dr was brilliant she has told me it's time to think of my health now and has given me a sick note ,I'm also using this as my period of notice I can't face going back to work and I'm lucky I can do without the money plus I want to have a clean break and concentrate on me. I'm pleased to say she also seemed to understand something about our condition and the steroids which was a relief , onwards and upwards now good luck everybody and thanks once again for your thoughts and support .
Good for you! Perhaps you will start to feel better when you are able to heed your body's demands for rest during the day.
I am sure you will be feeling relieved now you have made the decision, Molly. I know you have said you don't need the money but it is worth continuing to submit medical certificates to the department of work and pensions which will give insurance contributions towards your government pension. Who knows? You may decide you wish to travel the world when you feel better and your pension may mean you can keep going round the world!!!🚲🚈✈️ Good luck with your progress. I am having a sleepless night so the washing machine is on. Contemplating doing some ironing now and it is not my favourite task.😳😳
I was diagnosed with GCA and PMR in May. I don't think I have had a good day since July when I started reducing the Preds. I have been back up to 60mg and am now coming down again.25mg at the moment. I feel weepy, can't sleep, up at 4.30 am after a bad night, worry about everything, tempramental mood swings, basically I feel like crap all the time. I have, because of the Pred, developed Diabetes. I can't control my blood sugar. Went to see a new Dr last night and he explained that the side effects of the Preds were hourendous and has put most of the symptoms I have at the moment including the high sugar level down to the Pred. I came out of there so much happier. Still can't sleep. I hope as the Preds come down the symptoms will go. So Molly I know excactly how you feel and so do so many others on this site. Keep talking to us I have been helped so much by the lovely people here who have taken their time ti answer my cries for help. Thank you all so much, without you I would have gone stark raving mad. That's how I feel at times. Chin up Molly things will get better, keep talking to us please.
Good luck;so glad you made that decision as your health is more important.If you have sick notes you might be able to get pension credits so you do not lose out at retirement age.Not sure but would be worth checking out-do not know if you are in UK.I only just found out I am entitled to them as main carer for adult son. Government does not offer what you need but sure take it off you quick enough
Yes I'm hoping that's what's going to happen now Anhaga I'm free to to listen to my body properly
best wishes to you all its great to share with people who know exactly what it's like
Hi Molly,
I have been on prednisone for exactly 2 weeks today. I have done major reseach and read every forum and thank god I did. When I saw my Rumi last week I was going to ask to split my dose because I'm having every side effect including extremly bad headaches daily. Told not GCA by Rumi.The best thing she recommended was to split my dose and I've split it even more. I will tell her next visit.
I sleep terrible and always have but a little worse now but getting better in the last 72 hours.
This is how I do it on 20mg: I usually wake up at around 4:00 am and roll over and take 10 mg and roll back to sleep.
noon-1:00pm. At lunch I take 5mg
4:00 to 5:00pm I take the other 5mg.
I find it controlls the pain way better especially in the morning and subsides any afternoon pain if I over do it. My headaches are reduced and seem more manageable.