Hello I am awaiting a 24 hour ph manometry test I feel rather anxious about this test both about the test itself and the results!
Wondering if I have the test and then the acid results arnt that high will they still operate as I suffer with so many other side effects that really do take it out of me and effects my life I am only 27 and really do feel held back by the hernia
Hi Braker87, I don't think that you would have been referred for the PH test unless your GP thought you had a problem bad enough to warrant them doing it, so don't worry yourself about measurements and if it will determine whether they offer surgery or not. Having a hiatus hernia is horrid, painful and whilst not life limiting in a 'fatal diease' sort of way, it does limit what you can and can't do and eat in every day life and can make you tired and irritable. The test itself is also not something to worry about, if you can cope with the discomfort of the hernia and indegestion/reflux, then the strange feeling that having the test done is a walk in the park. It's not a pleasant thing but by no means painful - more annoying really. I had my tests late last year and my surgery in March this year and just wish I hadn't waited 10 years to have it operated on. Good luck and keep your chin up x
Thank you so much for your reply and reassurance! My test is booked for early September! How are you getting on
With your recovery? X
i have managed to stop all my indegestion medication now and my asthma has all but disappeared too! Easting for the first 10 weeks was a bit hit and miss but reassurance from my surgeom helped. I was eating sloppy things the first 5 or so weeks (jelly, custard, ice cream - well, you're recovering so i'ts ok to revert to being a 5 year old!) then started to introduce things with a little more substence to them like mashed potato but you really need to guage it yoursels as everyones recovery time will be different. Just take it slow and don't try to force food down before your body tells you it's ok as that can hurt a bit (just like if you swallow a bit of food you haven't chewed enough now) x
Hi breaker! just to wish you all the best with the tests. you sound just like me a worrier! take care. Val.
You seem to be recovering well which is really good! I've heard the eating bit is the most difficult to get to grips with but as you say I will try to take that as I find it each day at a time I may even loose a pound or two! I am looking forward past the operation to feeling myself again no more pain or discomfort x
Thank you val take care Xx
I'm waiting for my ph impedance test too ( mines booked for August 14) I'm scared that they may decide I haven't got enough reflux to operate, even though I'm still getting symptoms on all the meds. I'm really desperate to put all this behind me. It's ruining my life. Hopefully it will be ok for both of us. My consultant told me that a normal person refluxes 4% of the time. So I suppose anything over that gives you grounds to request surgery. Also if they expect you to be on your meds for life, then there's grounds there too .
Hi Stella your test is just before mine so please let me know how you get on! Your case and symptoms sound the same as mine and feel like it ruins and limits my life too I know that might be dramatic for some people and it's not a fatal illness but you can't help how you feel can you! I was offered the medication for life also but being young I don't want to take them
Forever so I think for me that the surgery is the best option my gp also agreed! The pain in my ribs is much worse then my acid at the moment do you suffer with that also? X
Hi Breaker! your a lot braver than i am! I refused to go for the endiscope as i've got a fear of being sick, and have had this since I was a little girl due to something which happened when i was at boarding school, and have never forgotten. I get a lot of acid reflux, and get so frightened that i'll be sick. also, sometimes, i don't have much of an appitite. Do you experience the same? Anyway, good luck to both you and Stella, and keep in touch and let me know how it goes. Val.
I was also so scared for the endoscopy but I had the one where I was sedated which made it easier and more comfortable I am glad I had it done now as they saw damage in my esopigas and that i had an infection in my stomach!! As for the loss of appetite i do get that and at times I get a feeling like something is stuck in my throat which makes it hard to swallow i don't know if you have had that or not but it is horrible x
I get pain just below my ribs - intense stabbing or just burning pain it's awful. The foods I can eat are few and far between. I've lost so much weight since this started. I had. Follow up gastroscopy in April and my oesophagitis had cleared but as soon as I cut back on some of the meds my throat and mouth started burning again. It terrifies me when it happens as I can't predict what's going on. A few months ago the thought of surgery was abhorrent to me, but now I feel it's the only way forward. I'm desperate for it! I want to go back to living my life not waiting for a symptom flare up because I've had a cup of tea at the wrong time 
I'll definitely let you know how I get on. How do you feel about stopping the ppis? It's a terrifying thought for me! X
Hey Val, the endoscopies are fine- have sedation it makes it all so much easier! I get the loss if appetite thing, especially when swallowing gets difficult ( that's happening at the moment) that's the thing that really freaks me out and depresses me I have a fear if vomiting too but the endoscopy doesn't really make you feel like that x
Yea that's the pain I get and at night it's worse also the right side of my ribs is tender to touch also!
I agree that the surgery is the only way forward I feel it is for me too at first I was terrified but being on here has put my mind at ease and also like you I just want my life back and to be able to eat and drink normally!!
I have had to stop all my tablets although I appointment is in early September I am top of the cancelation list so If an appointment comes up at any time I will get the appointment so for now i am taking 10+ Gaviscone tablets and the liquid inbetween which has little effect but it is all I can do for now x
That sounds awful! How's your acid been since you stopped your ppis? My consultant said I might be able to do the test and stay on the ppis ( mines an impedance ph test so measures everything that refluxes, not just acid) but to be honest I'm willing to take any test that proves that this problem is not going to be solved by taking tablets. For me the Gaviscon Advance has been a life saver - it's just the double strength alginate, doesn't have any other ingredients but it stops most of the reflux. I take loads of it and I think I'll rely on that to hey me through as you only stop that 24h before the test. It's made me feel better knowing there's someone in the same position who feels the same as me. I'm 48 so twice your age but I have a 2 year old son and would love to share an ice cream with him at some point soon 
Are you in the UK?
Yea I'm in the uk in London you?
To be honest I think I'm so used to the acid and my gaviscone overdose that I just kind of get on with things it's normal to me now which is horrible to say but the acid is worse as is the rib Pain since I have stopped my tablets!
It's nice knowing that your in my position and also that we have a lot of the same symptoms as me so it's nice I can relate
I'm up in Bolton so at least we can compare notes on the NHS! My consultant seems to think that I have a functional disorder - that I'm hyper sensitive. Thing is, I've had oesophagitis and I've got Barretts and I. Some countries that's enough for surgery. Never thought I'd be pushing for this, never in billion years! Fingers crossed you get your cancellation soon x
I never thought my symptoms would be this either as I have had them for around three years but finally got a referral to a private hospital that takes nhs patients so I must admit apart from the long wait for the ph test I have had quick results now like I said earlier I am just scared the results of the test will say no operation I think you need to carry on pushing as hard as you can as you need this x
Hi Breaker! Sometimes i feel that my food isn't going down, but it does eventually. keep me posted re test, and good luck. Val.
Definitely agree. My symptoms only started last November but by Feb I had grade 2 oesophagitis and Barretts. I had to fight to get my first endoscopy as my gp said I was asking for tests that would come back negative. I had gastritis too. I had to ask and ask to get a gastro referral and finally got referred from the ENT consultant who I was originally seeing for the lump in my throat. I used to wake up heaving in the middle of the night. I could feel the acid coming right up into my throat when I lay down and it burnt horribly, but you are right, you get used to it. I truly believed it was all in my head til the results of the endoscopy came back - ironically I was feeling better by then, so god knows what they would have found when I felt at my worst! The gastro docs don't know any of this as they never saw me at that time.
The swallowing thing is the worst. I hate that sensation! Just had my tea and dread thinking about swallowing before I eat. I'm going to call the hospital where the impedance test is to be performed on Monday and find out whether I have to stop ppis or not. My plan is to make myself reflux as much as poss over that 24hrs - tight pants, lying down after eating, loads of cups of tea, you name it I'm going to do it!