Pip reward review

[nh_user_966735]

I am currently on pip and esa due to my mental health issues.

I was award both for 2 years running.

When I was given the pip award and esa I had been struggling for over 10 years with depression anxiety and social phobia, receiving medication and therapy.

Since being awarded my PIP which I will have had for two years in November 2018, my issues have not “got worse” but have not got better and I have been given ANOTHER diagnosis of borderline personality disorder and ptsd on top of my current diagnosis.

I have new symptoms including

Periods of dissociation/out of mind expierences where I lose time and forget what I am

Doing, which can last hours or days. In those days I can Abandon all

Self care, including hygiene health medication and eating.

I have added this into my PIP reward review form and sent

The careplan and new diagnosis along with it and haven’t heard anything back yet which is causing me ALOT of stress and anxiety, especially as I’m more or less certain that they will expect me to go for a face to face accessment.

On top of this I am wondering if I need to alert DWP for my ESA Of my new diagnosis now or weather to wait untill they begin to review my claim after my two year reward period is up.

I’m so worried as have a lot of physically disabled friends that have had their benefit taken away from them when they are physically

Impaired where as I only have a mental disability and if they can deem someone with physical disability fit to work then god knows what they’ll make of me! I’m petrified, I have never been able to work as I struggle to look after myself, my mother is mum carer and I still live at home with her and I’m 22 years old. I feel a burden but don’t feel ready to work, I’m not sure I could handle it as living my day To day even now is such a struggle WITHOUT the responsibilities and streees and anxieties of working around people on in public and keeping to a time schedule when my moods and episodes

Are so unpredictable An my anxiety is linked to IBS which can be very debilitating at times, how am I suppose to work a normal job when I’m to and throw to the toilet at least 6 times a day and social environments trigger panic attacks that even my

Medication can’t control.

I just need some advice, has anyone been in a similar situation to me,

I honestly don’t know what I’ll do if they deny renewal of my money. 

[nh_user_1146188]

Hi Forestflower

I suffer somewhat similar conditions.  I too will be coming up for renewal of PIP in 2019.  I have read some threads that say we are to start our applications now? not sure if this is true, I need to get in touch with CAB.

Never say "it's only a Mental Health Disability" .  As we both know, these disabilities can be the worse, even with help, I may never surface from my room for days, or the house for weeks on end.  Even then I am so scared I have to have someone with me.

I also suffer IBS which rears its head at the most inconvenient of times.  On average I go about 8 to 9 times a day.  So as you say ...who is going to employ someone who has to rush back and forth the toilet all day.  Keep a diary of all your typical days, of everything, including who made your lunch, whether you could eat it, what your anxiety feels like, what your depression feels like.

I had my PIP f2f at home, where they could see that I don't get dressed, I don't get washed, I don't eat, and only eat when I can and also my burns where I have got distracted from just making a cup of tea.  

I don't really get any good days, everyday I cry. This is a burden on my family and friends.  I don't have a social life, it's barely a life, yet we are made to jump hoops to prove this ... ironic they ask people with disabilities to jump hoops

Sorry I can't give you any information on claiming, but I think from what you say you have notified them of all your conditions.  Don't let them embarrass you.  They tried doing that to me.  As a matter of fact all this applying for PIP and ESA has made my mental health worse.

The CAB are really good at getting information and advice and will sometimes fill in the forms for you.  Also go on youtube, there are lots of videos there, some explaining what to do, and some people just sharing their own experiences.

I really hope things go well for you, it is a tragedy that we are treated this way in the 21st Century.

I had a very nice PIP lady, who came to the house and awarded me PIP.  My struggle for ESA went to Tribunal.  It was a horrifying experience, The Judge was lovely but the Doctor was so ignorant. I fought really hard in that tribunal, I had nothing to lose. I was put on the support group for ESA for the next two years.

I do wish you all the best and take whatever help is offered to you.  You are not alone   there are many of us Mental Health sufferers about.  And more is being done for mental health, although I am not sure this is enough.

But my advice would be to keep a diary, from morning to night.  How you feel, how many times and at what times you needed the loo, if you ate, who made it for you, who helped you that day, and what did they help you with.  Add in anything else that you think relevant and when you get your f2f you will have something to help you should your mind go blank.  Also try and opt to have the PIP f2f at home.

Let me know how it goes.  People care  

[nh_user_1192221]

I am going through the same distressing thing It's made go down hill since my PIP trial from December 2017 to now , I am at the stage of waiting for a tribunal date, I gave proof of my illnesses and I feel like the PIP assessee didn't even look at my doctor's statement,everything is making my BPD Worse than It has ever been.Help !

[nh_user_990899]

Hi,

Unfortunately the back logs for Tribunals are huge all over the country and lots of people are waiting a year for their hearing date. You can ring the Tribunal with your reference number and ask them how much longer they expect it to be. Are you appearing in person or asked for a paper based decision? Appearing in person will give you the best chance of winning. This way the Tribunal can see for theirself exactly how you're affected. It also gives you the chance to tell them how your conditions affect you everyday. 71% of those who appear in person have a decision in their favour.

Also, the Tribunal will only be able to take into consideration how you were at the time of your assessment. Any worsening of your condition since that date doesn't count.

I know it's very stressful, everyone feels exactly the same. The good news is that you're not on trial for a Tribunal and it's not a court either. It's a room with a table with a judge, a Dr and possibly a representative from DWP. They will listen to what you tell them and are totally independent to DWP and the assessors.

If you have any more evidence, this should be sent to arrive no later than 10 days before the hearing. If it's sent later than that or taken on the day there's a chance that it won't be used as evidence.

Good luck.