It's such a brilliant video in youtube! So spot on and humerous.
When I asked a doctor to write me a letter of support when I was trying to get DLA he wrote 'In my opinion sick people should work!'
What atrocious things have people said to you?
Another one, I have multiple chemical sensitivities and was trying to get my son to spray his Lynx on outside the house before collage because if he did it inside I've have a headache all day.
He said 'You're a lunatic! You just don't like the smell.' Yup.
Lol Georgia! Funny but infuriating too! 😁 .
Very funny... I can just feel my blood pressure rising listening to that, as I think someone has said all of those to me at some point.. 
Yes grrrrrrrrrrr, trying to get people to understand is like peeling a banana with your teeth only.
Great analogy! 
Yes Mike, me too and more! When she mentioned the Yuppie disease it reminded me of the first time I heard of ME years ago. It was 'Only Fools and Horses' Del Boy mentioning the yuppie disease.
No idea where it came from!
Nice share Georgia, thats made my day. I remember my doc once talking at me like im a complete hypochondriac saying in her most sympathetic and patronising voice "I know, you're worried because you think we must be missing something really serious" - she was a bit taken aback when i retorted with "no i'm not, you've proved i'm not dying with all the tests, i'm worried that because you think it's nothing serious you're just going to leave me like this". I'm glad i stuck with her though as, she is actually a really nice lady and now she's used to me (and ME) she has become a lot more understanding and more willing to refer me.
My other favourite is when referring to rude specialists "I'm sorry they were not very sympathetic" I don't want their sympathy, I don't care how blunt or dry they are, I'm not there for them to be my friend, I just need them to stop being so dismissive so I know they are actually hearing what i'm saying and taking me seriously. I hadn't worked in 18 months when one specialist said to me "yes I get tired too, perhaps you're just doing too much, maybe you could try doing less hours" - at that point I knew he hadn't listened to a single word me or my partner had said - I refuse to see him now and always ask for someone else, afterall how can someone even begin to help you when they havent even listened to the problem.
Thanks for making me smile Georgia
Glad you liked the vid Kirsty! That young girl is excellent isn't she.
Don't get me started. When my mum and friends tell me on the phone that they're tired or have some minor affliction like a cold I just act sympathetic while my head is screaming!!!
oh yes! I can't bear people who get frustrated cause they are ill for a week or two lol my other favourite is perfeclty healthy people who by their own admission "can't be bothered" to exercise, even though they say themselves they know they will feel better in a couple of weeks once they are into a routine, if only we could have that back
If only they knew to appreciate their health and stop grumbling about how awful they feel to us when they have a headache or they've had a bad day, try years of bad days! It's so insensitive of them. Would they do that to a person with MS or cancer? No! So why do they do it to us?
Because the medical profession can't make money out of us yet and if they don't take us seriously no one else does, even our nearest and dearest. Stark reality, money to be made. When they invent a drug for us people will take us seriously even if the drug doesn't work. Big pharma.
Another thing that really gets to me is that friends and family don't realise it can hit anyone, even them, healthy people (I was very healthy when I got it, happy, on a good diet etc), young people, older people, male female.
Anyone can be hit by this tornado but they don't realise it.
Hear hear Georgia! We need to get you up to Hyde park Speaker's Corner! 😉
Hehehe I am quite loquatious!
How many have heard this sort of thing...
"Yep I get tired as well. you need to go to bed early thats what I do". I nearly punched the person to say the least, as I had been telling them for 2/3 minutes how bad ME/CFS is and why I was ill that day.
I don't know whether to laugh or cry, or dissolve into a hysterical heap Dragon!
All the people that need a good punching and we haven't got the energy to do it!
People are funny creatures, my gran has terminal cancer, they are keeping it at bay with medication but they don't know how long she has, they thought months at first but now it is looking like it could be more like years. She still gets out and about to socialise with friends and to look at her and talk to her you wouldn't have a clue anything is wrong.
If I mention that i'm not well I get told "you looked alright when I saw you out the other weekend". Whereas my gran is told how good it is that she still goes out and about.
I'm not comparing my illness level to my grans by any means, but it really does show how peoples thought processes differ depending on your illness and the attitude they choose to show towards it. I'm not quite sure why just because i'm ill with something they don't understand or accept i'm meant to constantly remain locked away behind closed doors to prove i'm ill, but someone else who i would consider much more severely ill than myself is encouraged to go out! I think they need to make their minds up about "acceptable ill behaviour" and stick to it lol
It's crazy isn't it! I've read reports saying that people with ME can have less energy than people dying in the last stages of Aids or Cancer!
And, I hesitate to say this because I don't want to worry anyone, but this is a terminal disease. Some people die from it, from either organ failure, usually the heart or liver, or suicide.
It's probably not most of us but some do.
Yeah I find it so hard to get my head around that fact sometimes, it only hits home when you read about someone who is far worse off than yourself that you are reminded just how bad it can get.
I think I just never think of my own case as possible terminal illness as there are so many people with ME that have it much worse than I do and I don't see myself and being as ill as they are, but then I guess we are not socially conditioned to take our own illness very seriously anyway, so its hard to think of yourself as being that ill without any test results to back it up.
Because of the unnaceptance of how ill I am by the medical profession and other people I find myself struggling too hard to do things, and I often have to remind myself of how serious it is and to be more gentle with myself.